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To whom?

We pay support to a child diagnosed with a rare disease whose severity of a disability has not been determined (age group 0-15 years).

For a child diagnosed with a rare disease whose severity of a disability has not been determined, we pay support for the prevention of disability and to compensate for the resulting additional costs if the development of a disability would be unavoidable without prevention.

Rare diseases for which we pay support are: phenylketonuria, galactosemia, maple syrup disease, pyridoxine-dependent epilepsy, homocystinuria, lysinuric protein intolerance, glucose transporter defect, fructosemia, glutaraciduria (type 1 and 2), cystic fibrosis.

We pay an allowance of 161.09 euros per month.

How to receive?

Toetuse saamiseks tuleb sotsiaalkindlustustusametile esitada puude raskusastme tuvastamise taotlus.

To get the allowance, submit an application for determining the severity of the disability to the Social Insurance Board.

There are several ways to apply:

Last updated: 18.05.2023

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