Allowance for a child with a rare disease

To whom?

We pay support to a child diagnosed with a rare disease whose severity of a disability has not been determined (age group 0-15 years).

For a child diagnosed with a rare disease whose severity of a disability has not been determined, we pay support for the prevention of disability and to compensate for the resulting additional costs if the development of a disability would be unavoidable without prevention.

Rare diseases for which we pay support are: phenylketonuria, galactosemia, maple syrup disease, pyridoxine-dependent epilepsy, homocystinuria, lysinuric protein intolerance, glucose transporter defect, fructosemia, glutaraciduria (type 1 and 2), cystic fibrosis.

We pay an allowance of 180 euros per month.